| How many volunteers were present at the Congress? : |
3000 |
| Delegates from which countries presented in the congress? : |
USA-UK-Germany-Italy-Netherland-Belgium,.... |
| Were the delegates of any other organizations present in the congress? : |
Yes |
| If yes, please write the names of the organizations in the box : |
European Society of Human Genetics |
| What were the responses to your talking points? Were specific questions or concerns raised? : |
Our hypothesis was very novel in prenatal diagnosis by cell free fetal DNA, because it suggests a cost-effective method by differential methylation between mother and fetus as an alternative of next generation sequencing of DNA that extracted from maternal plasma. So, It was so intersting for participants. |
| If you met staff members, please list their full names & positions. : |
Dr. Jeffrey Barrett, Cambridge, United Kingdom
Dr. Brunhilde Wirth, Chair, Cologne, Germany
Dr. José Tijsen from Harmony Co., USA
etc., |
| Please inform us if there are any follow up actions we need to talk with the members of the congress : |
I talked with staffs of many companies that present biological and genetics products with goof offers. Also, I invited them to corporate with our department. For example BGI, Life science, Bio labs,....
The Society has an Executive Board (comprising the officers of the Society) who report to the governing Board, which consists of about 20 members. According to the statutes, each year up to two Board members are elected by the Society membership, and up to two Board members are nominated by the Board itself. This is to try to achieve a wide spread of representation, in line with the special interests of Society members.
The Board has set up several committees to oversee aspects of the Society organisation, and appoints the chairmen. A full activity report is presented to members at the membership meeting at the annual European Human Genetics Conference. Nominations are sought from members for the prestigious ESHG Award, prize donated earlier by the Baschirotto family at the European Human Genetics Conference.
There is an Annual Meetings Committee which is responsible for all the practical and legal arrangements for the European Human Genetics Conference. The scientific programme is arranged by the Scientific Programme Committee. |
| Your experiences about the travel processes(Providing ticket, accommodation,...) : |
I just returned from a one week Italian vacation and absolutely fell in love with the country.
I can't say enough about what a wonderful experience I had, and how much I recommend traveling to this historical country. |
| Please give a briefing of your own observations and outcomes of the congress: : |
European Society of Human Genetics (ESHG), was founded in 1967 by a small group of outstanding European Geneticists (European Journal of Human Genetics: 3, 63-64, 1995). The decision which led to the founding of the ESHG was taken at an informal meeting of European participants at the IIIrd International Congress of Human Genetics in Chicago in September 1966. Membership was open; the first annual membership fee was $6. The founding chairman was J. Mohr who was secretary-general of the society until 1991.
The ESHG is in regular contact with different directorates of the EU commission and other scientific organisations. With the support of the ESHG, the European Alliance of Genetic support groups was founded in 1991 in Leuven. The EAGS (now European Alliance of Patient and Parent Organisations for Genetic Services and Innovation in Medicine) meets at every annual meeting of the society and interacts regularly with the society on issues pertaining to the interests of the patients.
The society has a partnership with some major diagnostic biotech companies to keep abreast of all the complex issues related to human genetics.
I believe that this scientific event will be a continuation of the previous successful meetings, held in various cities of european countries. In recent years, medical genetics has undergone profound changes and progress in the academic and medical level. European recommendations relating to treatment and diagnosis of rare genetic diseases network require collaboration between academic institutions and medical scientists from all of the world. |