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Intl. Congress form | International Congress Report | International Congress Report For Faculty | The report of 21st International Congress on Palliative Care, Palais des Congrès, Montréal, Canada O...

The report of 21st International Congress on Palliative Care, Palais des Congrès, Montréal, Canada October 18-21, 2016 – Du 18-21 octobre 2016 by Dr. Marzieh Hasanpour
The report of 21st International Congress on Palliative Care, Palais des Congrès, Montréal, Canada October 18-21, 2016 – Du 18-21 octobre 2016 by Dr. Marzieh Hasanpour
Application Code :
306-0117-0013
 
Created Date : Sunday, January 22, 2017-18:40 18:40:08Update Date : Monday, January 30, 2017-18:17 18:17:00
IP Address : 194.225.213.100Submit Date : Monday, January 30, 2017-18:21 18:21:34Email : m-hasanpour@sina.tums.ac.ir
Personal Information
Name : Marzieh
Surname : Hasanpour
School/Research center : School of Nursing and Midwifery
If you choose other, please name your Research center :  
Position : Associate professor
Tel : +98-21-61054413
Information of Congress
Title of the Congress : 21st International Congress on
Palliative Care, Palais des Congrès, Montréal, Canada
October 18-21, 2016 – Du 18-21 octobre 2016
Title of your Abstract : The End-of-Life Spiritual Care Service Package in the Newborn Intensive
Care Unit(s)
Destination Country : Canada
From : Sunday, October 16, 2016
To : Sunday, October 23, 2016
Abstract(Please copy/paste the abstract send to the congress) : Objectives: Despite of current advances in the child care scientific models, the most of children are at risk of dying in the neonatal period or immediately before delivery. Parents experience deep pain and suffering because of the death of their infant. Several studies mentioned that the most agonizing experience in the parents’ life is their child’s death which suffer them extremely and could remain fresh even many years after infant’s death. Researchers’ experiences revealed that, families after their infant death in the Newborn Intensive Care Unit (NICU), didn’t revise appropriate end of life and spiritual support care. The aim of this study was to provide a service package of spiritual care at the end of life in the NICU to support infants and families.
Methods: This study was approved by organizational ethics committee No.393, 003. In this research triangulation method was used in fourth phases. The method of initial phase of study was qualitative content analysis to explore the spiritual needs of families with an infant in his/her end of life in the NICN. The second phase of study done by review of the literature to develop the primary draft of service package based on the categories of initial phase. In the third phase, the primary draft of service package reviewed and revised by the expert participants from different cities of a Muslim country who to attended in different session of expert panels by support of Neonatal Health Office in the Ministry of Health(NHOIMOH). In the fourth phase, we calculated the mean score of applicability of service package’s recommendations in the clinical settings from NICNS’ nurses’ perspective in a pilot study. 
Results: Qualitative phase of study revealed six main themes of family’s spiritual needs in the end of life of infant death in the NICN(s) including: human dignity for newborn; need to comfort of soul; spiritual belief in supernatural power; Supportive and preparation needs in the infant's death; reliance information and communication needs; spiritual and compassionate care needs for infant and family. In the literature review phase we searched and accessed to 2147 related articles and finally carefully chosen and analyzed 55 more related articles to prepare service package’s draft. Finally based on the results of qualitative and quantitative phases the service package prepared in three sections including: the spiritual end of life care for Infant; spiritual care for infant’s family in NICU; and spiritual care for family in bereavement. 
Conclusions: According to the results of this study we recommend implementation of this culture based service package in the national NICU(S) by support of NHOIMOH, and other NICU(S) in the world with same cultures to assess end of life spiritual needs of infants and families in NICU(s) and to provide best and appropriate care for them based on this clinical guideline.
 
Keywords of your Abstract : Key Words: Spiritual Care, Family, End of life Care, Infant, Service Package, Newborn Intensive Care Unit (NICU)
Acceptance Letter : http://gsia.tums.ac.ir/images/UserFiles/28300/Forms/306/Acceptance_letter_Hasanpour_Canada_palliative_care_Conference___2_.pdf
The presentation : Oral
The Cover of Abstract book : http://gsia.tums.ac.ir/images/UserFiles/28300/Forms/306/Program_book_Canada_Pal2016_onsite_booklet_web.pdf
Published abstract in the abstract book with the related code : http://gsia.tums.ac.ir/images/UserFiles/28300/Forms/306/Canada_PMJ_Journal_Service_package_of_spiritual_Care.pdf
Where has your abstract been indexed? : ISI
If you choose other, please name :  
The Congress Reporting Form
How many volunteers were present at the Congress? : More 1600 participated in this congress and about 100 volunteers were working as well
Delegates from which countries presented in the congress? : participants from 6o countries participated and Canada, Europe, USA, China, and Australia, Iran, India, UK and many more countries
Were the delegates of any other organizations present in the congress? : Yes
If yes, please write the names of the organizations in the box : A lot of delegates
What were the responses to your talking points? Were specific questions or concerns raised? : Participants asked me different questions about our religious and beliefs on death and end of life care in NICU and spiritual care in Iran and our service package
If you met staff members, please list their full names & positions. : Dr Nago palliative care specialist and pediatrician , Dr Payot Palliative care therapist and neonatologist, Dr Jane Social Worker, Dr Salsali phD in Nursing, Dr M Heidarzadeh Neonatologist, Marsye Palliative care nurse practitioner, Lysanna palliative care nurse practitioner, Jorj , spiritual therapist and many more. All of the participants' names are in the booklet and I talked with different people around the world.
Please inform us if there are any follow up actions we need to talk with the members of the congress : I think we should consider more to this aspect of caring for clients and I am interested to plan an international congress on palliative care in our country and I am willing to help in this regard as scientific director. I think connection with McGill University and Palliative Care Association could be helpful for establishing Palliative care in Iran.We could do collaboration for future congress on palliative care with some staff, hopefully. I visited palliative and spiritual care and developmental and NIDCAP program in three children hospitals in Montreal and Edmonton and have connection with them hopefully for next steps to improve this such an important area in Iran.
Your experiences about the travel processes(Providing ticket, accommodation,...) : It was so expensive, time consuming, but nice to participate and improve my knowledge and experience, deepen my understanding, and inspire me to renew my commitment to palliative and spiritual care and NIDCAP programs. I have not visa card and it was challenging to reserve hotels. in this trip I arrange to visit 4 hospital in Canada and Italy and I presented one more article as poster in Palliative care congress and also oral presentation in NIDCAP meeting in Italy. I shared all my experiences in different congress, nursing school and clinical setting, but unfortunately not enough support of school and university and just 7 days off, as I am Counselor of Dr Motlagh in health Ministry and the plan of trip could help me more to improve infants and children health. Canada have no embassy in Iran and this was another issue. The payment of University really is not enough. My abstract selected and published in pain and symptom management journal but no more help or facilitation for this such a proactive scientific trip!! from my organization, at least about work off.
Please give a briefing of your own observations and outcomes of the congress: : Congress was very productive to me and most important different point was reflective session and care of caregivers program and multi and interdisciplinary aspect of congress. Congress was very productive to me and most important different point was reflective session and care of caregivers program and multi and interdisciplinary aspect of congress. It was so important we could learn about different culture and religious and clients need in end of life. It was so interesting to me that art and Music was important part of congress one of palliative care strategy. I learnt that palliative care is not just for end of life people and for adult and patient with cancer. I learnt newborn, children and anybody suffering from pain and no any choice to cure can receive palliative care does not matter he/she suffering from acute or chronic disease. This congress was my wish and I tried a lot to attend it. I learnt from this congress how we are postponed in this aspect of caring and when in the world we have 21st congress on palliative how we can imagine in Iran we have nothing on it or just going to start specially for newborns and children. then I am so disappoint for my poor people and caring is not holistic and just all treatment and care is based on medical model, that very old version of caring in the world and lots and lot challenge and issues in our health care services do not pay attention yet based on clients and family needs. then we have to open the eyes and see the things other ways.